Therapy per Stage of Disease

Neurological physiotherapy promotes movement and quality of life in patients who have had severe brain or spinal cord damage from trauma, or who suffer from neurological diseases such as Machado-Joseph Disease, stroke, Parkinson’s Disease and Multiple Sclerosis. The MJD Foundation conducts a program of regular strengthening and conditioning exercises, conducted ‘on country’ and using gym equipment, as well as individual home programs under the umbrella of its ‘staying stronger for longer’ therapy program.

This medical protocol outlines the MJDF’s physiotherapy program per stage of the disease.

Sleep Disturbance/Fatigue

The most common sleep disorders experienced by people with MJD are rapid eye movement disorder (REM) restless legs syndrome (RLS), periodic limb movements of sleep (PLMS), REM sleep behaviour disorder (RBD), excessive daytime sleepiness (EDS) obstructive sleep apnoea (OSA) and insomnia. (D’Abreau et al 2008). Nocturnal awakenings and nightmares have also been reported (Fututake et al, 2002). Excessive Fragmentary Myoclonus (EFM), a relatively newly considered sleep related movement disorder of simple movement and short duration, is also known to be highly prevalent in people with MJD and impacts on sleep quality (Fernandes dos Santos, 2014). This medical protocol outlines the types of sleep disorders associated with MJD.