Resources
![]() | 2018-2021 - MJDF Strategic Plan | ||||||||||||
Annual Reports | 2019/2020 - Annual Report | ||||||||||||
Financial Statements | 2019/2020 - Financial Statements 2018/2019 - Financial Statements 2017/2018 - Financial Statements 2016/2017 - Financial Statements 2015/2016 - Financial Statements 2014/2015 - Financial Statements 2013/2014 - Financial Statements 2012/2013 - Financial Statements 2011/2012 - Financial Statements 2010/2011 - Financial Statements 2009/2010 - Financial Statements 2008/2009 - Financial Statements | ||||||||||||
MJDF Media | 22 Apr 09 - ABC Radio Interview with Libby Morgan => Podcast | ||||||||||||
MJD Resources | Frequently Asked Questions - Have your FAQs answered about Machado Joseph Disease and the MJD Foundation =>Download What is MJD? - Genetics in General Practice presentation =>View here MJD SARA client assessments DVD - Associate Professor John MacMillan demonstrates the use of the Scale for the Assessment and Rating of Ataxia (SARA) standardised medical examination =>View and dowload here 2012 Research Paper - "Mutational Origin of MJD in the Australian Aboriginal Communities of Groote Eylandt and Yirrkala" MJDF Clinical Approach - View the video here Dr Howard Flavell, Rehab Specialist at RDH, talks about the symptoms of MJD - View the video here Nick Kenny, Physiotherapist, talks about physio sessions on Groote Eylandt - View the video here Jenni Langrell, Manager Angurugu Health Centre, talks about nursing and Advanced Care Planning for people with MJD - View the video here Michaela Jackson, Speech Therapist, talks about speech therapy sessions on Groote Eylandt - View the video here 2017 Paper Published - Urinary continence and living with Machado-Joseph disease: Insights from a literature review and experience of the Machado-Joseph Disease Foundation 2019 Paper Published -‘Staying strong on the inside and outside’ to keep walking and moving around: Perspectives from Aboriginal people with Machado Joseph Disease and their families from the Groote Eylandt Archipelago, Australia' 2019 Paper Published - 'YolÅ‹u with Machado–Joseph disease: Exploring communication strengths and needs.' For a complete list of publications MJDF has either funded or been involved in =>Click here | ||||||||||||
Submissions/ Publications | 2020-10 Publication "A community-based co-designed genetic health service model for Aboriginal Australians" => View here #RemoteAustraliaMatters | ||||||||||||
NDIS | Article - "Will the National Disability Insurance Scheme Improve the Lives of those Most in Need? Effective Service Delivery for People with Acquired Brain Injury and other Disabilities in Remote Aboriginal and Torres Strait Islander Communities". Australian Journal of Public Administration (Authors: Anne Stephens, Jennifer Cullen, Libby Massey & India Bohanna). MJDF Going on Country - how MJDF makes our NDIS plans work for us =>View here | ||||||||||||
MJD and Genetics | Genetics 101 - Genetics in General Practice presentation (Part 1) MJD Genetic Booklet - English DVD - MJD Family Business - Messages for Women | ||||||||||||
MJD Medical Information
MJD Carer Information
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Visit our MJD Foundation flickr gallery Aug 2008 - MJD Foundation Launch - Groote Eylandt | |||||||||||||
![]() | Visit our YouTube channel here. | ||||||||||||
| Other Foundations Spinocerebella Ataxia Australia | ||||||||||||
| Groote Eylandt Anindilyakwa Land Council |