MJD Foundation

News & Events


BIG Research WorkshopOct 2017 - MJDF Paper Published in the Australian & New Zealand Continence Journal where we discuss bladder issues, MJD, and specific challenges for our clients - "Urinary continence and living with Machado-Joseph disease: Insights from a literature review and experience of the Machado-Joseph Disease Foundation" =>Download
BIG Research WorkshopAug 2017 - MJDF staff recently attended the Better Indigenous Genetic (BIG) Health services workshop at the Uni of Melbourne =>More
ZebrafishAug 2017 - Exciting results from the Zebrafish research lab in Sydney published in The Australian and Journal of Neuroscience =>More
Parliament of AustAug 2017 - MJDF Submission to the Parliamentary Joint Standing Committee - NDIS Transitional Arrangements =>Download
Ferris wheelJul 2017 - MJDF NDIS Unit Costing review - comparing NDIS pricing to actual MJDF costs =>Download
PCJuly 2017 - MJDF Submission to the Productivity Commision's Position Paper on NDIS costs =>Download 
GR2017 presentersMay 2017 - the MJDF in collaboration with VIC Clinical Genetics Services toured 6 locations in 5 days to deliver 9 genetic education workshops on Machado Joseph Disease to 119 health professionals =>More
Minister_ScullionMar 2017 - Federal Court Appeal re ABA funding Successful against Minister Scullion

AR 2015-2016Dec 2016 - MJDF Annual Report for 2015-2016 released =>View

And Addendum (Dept of Health funding)


Janine info session - walkingNov 2016 - the MJDF ran a November 2016 careworker workshop in Darwin to provide targeted education for Darwin based careworkers who care for people with MJD. =>More
RAHC Julie Tommy AaronNov 2016 - Remote Area Health Corps (RAHC) and MJD Foundation (MJDF) launch a new eLearning module for Machado Joseph Disease =>More
Golf day - WinnersSept 2016 - The Alyangula Golf Club held a golf fundraiser for the MJDF on Groote Eylandt. Once the golf was completed an auction was held in the evening at the Golf Club. The day raised an amazing $20,000. =>More
Julies holiday - banana rideSept 2016 - Thanks to the generosity of our donors, Elcho Island women Julie Wunungmurra and her daughter Shani and their families holidayed on the Gold Coast =>More
Mens Camp - Hawks familyAug 2016 - In August 2016, the MJDF held a Men's Camp and house renovation at the remote outstation of Ngalawan (near Ngukurr on the Roper River). =>More
Elcho variety bus18 Aug 2016 - Morag our Operations Manager joined Melanie from Variety NT on Elcho Island for the launch of the new accessible school bus. =>More
Medical Protocol11 Aug 2016 - Eye Movement Disorders in MJD - Medical protocol has been released.  Thanks to Professor Carlos Gordon and Dr Angela Laird for their critical input. =>Download
Steph kinconnect - familyJun 2016- MJDF's Desireé LaGrappe and volunteer Karen Munro supported Stephanie Nganjmirra to go back to her country in Oenpelli. The ladies drove out from Darwin in the MJDF 4WD. =>More
Darwin office Tony19 Feb 2016 - The MJD Foundation opened its doors to more than 60 people on February 19th, 2016 to celebrate the new office opening at Caryota Court, Coconut Grove =>More
Kaitleen02 Feb 2016 - Help us to raise the final $10,000 needed to purchase a new wheelchair accessible school bus for Elcho Island  =>More
Damien Howard video15 Jan 2016 - New video release: Damien Howard, Clinical Psychologist, talks about the social and emotional wellbeing of clients with MJD and their families =>More
Desiree LaGrappe video15 Jan 2016 - New video release: Desiree LaGrappe, Registered Nurse, talks about the symptoms of MJD from a nursing perspective such as pain and pressure care =>More
Ellen Christian video15 Jan 2016 - New video release: Ellen Christian, Occupational Therapist, talks about modifying housing to make it accessible for clients with MJD =>More
Ali Beckwith video15 Jan 2016 - New video release: Ali Beckwith, Occupational Therapist, talks about communication strategies for clients with MJD =>More
Michaela Jackson video15 Jan 2016 - New video release: Michaela Jackson, volunteer Speech Therapist, talks about speech and swallowing issues experienced by clients with MJD and her therapy sessions on Groote Eylandt =>More

News for 2015 here.2015

2014News for 2014 here.
2013News for 2013 here.
2012News for 2012 here.
2011News for 2011 here.
2010News for 2010 here.
News for 2009 here.  2009
News 2008News for 2008 here.

Coming Events

Ongoing - if you wish to give a small gift to one of our clients, you can donate an iTunes gift card as part of our social and emotional wellbeing project.

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