MJD Foundation

Sad News - June 2009

This week, we lost a young man with Machado Joseph Disease. He was only 38. He lived in Angurugu, and was that very special man who went on his Road Adventure with Bryan Massey from Darwin to Brisbane last year.

For anyone who felt the warmth of that amazing smile, he was a motivating force for all of us in the fight against MJD.

With the support of the Anidilyakwa Land Council and the federal Department of Families, Community Services and Indigenous Affairs in helping us get the MJD Foundation up and running, we were able to improve the short life he had in the following ways throughout the last year:

Losing him has made us even more determined to make an impact to help others with the disease now, and those who will inherit it in the future.

Our current numbers confirm that the NT Indigenous Australian population has, by far, the highest prevalence of MJD in the world.
We have 4 new cases in Angurugu alone in the last few months, let alone the cases that have recently emerged in Ngukurr, Birary Birany and Papunya.

Thank you again for your support, and we will need this ongoing support in the future.