MJD Foundation

Resources

Newsletters
Newsletters


Edition 1 - Summer 2008/2009
Edition 2 - Autumn 2009
Edition 3 - Winter 2010
Edition 4 - Autumn 2011
Edition 5 - Spring 2012 

Annual Reports
Annual Report 2011-2012


2012/2013 - Annual Report
2011/2012 - Annual Report
2010/2011 - Annual Report
2009/2010 - Annual Report
2008/2009 - Annual Report

MJDF Media
ABC Radio

22 Apr 09 - ABC Radio Interview with Libby Morgan => Podcast
28 Jul 09  - National TV Campaign launched =>More
15 Aug 09 - The Weekend Australian =>More
22 Oct 09 - ABC Radio Interview with Nadia Lindop  =>Podcast
23 Nov 09 - SBS Living Black features Machado Joseph Disease =>More
08 Jun 10 - ABC Radio Interview with Nadia Lindop (Aircraft WCh Lifts) =>Podcast
16 Jun 10 - Koori Mail article on Aircraft Wheelchair Lifts =>Article
03 Dec 10 - Healthy Stories Interview - Simone McGrath =>More
03 Dec 10 - Healthy Stories Interview - Gloria O'Hare =>More
10 Dec 10 - Paul Newman grant in Koori Mail =>More
05 Mar 12 - ABC Radio Interview with Ange Chesters (Hip Hop) =>Podcast
16 Jun 12 - The Australian - "When Grief is a Family Legacy" =>Download
15 Jan 13 - NT Arts Hub - "Cameras Keep Rolling on Remote Groote Eylandt" =>More 
22 Apr 14 - ABC Lateline "Rare Machado-Joseph degenerative brain disease on the rise in NT Aboriginal communities" => Article/Podcast 

MJD ResourcesGenetic Book - English

MJD and MJD Foundation Overview - download an overview of Machado Joseph Disease and the MJD Foundation =>Download

Frequently Asked Questions - Have your FAQs answered about Machado Joseph Disease and the MJD Foundation =>Download

What is MJD? - Genetics in General Practice presentation =>View here

2012 Research Paper - "Mutational Origin of MJD in the Australian Aboriginal Communities of Groote Eylandt and Yirrkala"

"Living with Machado Joseph Disease - A Guide for all Australians" =>Download

MJD and Genetics
Genetics in Primary Health

Genetics 101 - Genetics in General Practice presentation (Part 1)
What is MJD? - Genetics in General Practice presentation (Part 2)
Genetic Counselling checklist - for Doctors/Nurses =>Download 
Doing an MJD blood test - for Doctors/Nurses =>Download  
University of UTAH tour of basic genetics 

MJD Genetic Booklet - English
MJD Genetic Booklet -
Anindilyakwa

DVD - MJD Family Business - Messages for Women
English    Anindilyakwa     Yolgnu Matha     Kriol

MJD Medical and Carer Information

 


Medical ProtocolsMedical Protocols for Health Professionals

Help Sheets

Help Sheets when caring for a person with MJD

 

Photo Gallery
Photo Gallery

Visit our MJD Foundation photo gallery

Aug 2008 - MJD Foundation Launch - Groote Eylandt
Dec 2009 - Young Men's Camp
Dec 2009 - Natalya's Ramp
Apr 2010 - Gwenda's Respite trip to QLD
Jun 2010 - Aircraft Wheelchair Lift launch 
Dec 2010 - Umbakumba Bike Race
Jul 2011 - Carer Education Workshops Darwin
Jul 2011 - Carer Education Workshops Groote
Nov 2011 - Young Men's Filming project "Our Story"
Jan 2012 - Hip Hop Workshops
Feb 2012 - Elcho Island Wheelchair Lift Lauch
Feb 2012 - Backyard Blitz - Groote Eylandt
Jun 2012 - Wheelchair Prescription Workshop
Sept 2012 - Adult Learner Week
Apr 2013 - Telstra visit to Groote Eylandt
Apr 2013 - Carers' DVD launch - Saltwater & Smiles
Aug 2013 - Women's DVD launch - MJD Family Business - Messages for Women

 YouTubeVisit our YouTube channel here.

 

Other Foundations

Spinocerebella Ataxia Australia
Australian Huntington Disease Association 
Muscular Distrophy Australia
National Ataxia Foundation - USA 
StopMJD.com - USA 
Genetic Alliance - USA
Ataxia UK 
Fredreich Ataxia Research Association - Australia

 

Groote Eylandt

Anindilyakwa Land Council 
Dugong Beach Resort 
Anindilyakwa Arts and Cultural Centre 
GEBIE 
GEMCO