MJD Foundation

Genetic Education

 

 

Assoc Prof John MacMillan in Genetic Counselling session with MJD sufferers

Since 2008, the MJD Foundation has been very committed to ensuring that our Indigenous families affected by MJD in the Northern Territory have access to regular and culturally appropriate genetic education and counselling.

The MJD Foundation has worked with Medical Geneticist Associate Professor John MacMillan since 2008 to develop Genetic Education resources (such as our Genetic Booklets and Women's DVDs in language).

From 2008 until early 2011 the NT Dept Health and Families engaged Genetics Queensland to provide Genetic Counselling and testing services, however the MJD Foundation supplemented these services to allow Assoc Prof John MacMillan to engage more frequently with communities and more widely within communities.

 Assoc Prof John MacMillan

In early 2011, the NT Government contract with Genetics Qld was completed, and the NTG is determining what services will be provided in the future.

The MJDF is continuing to work with Assoc Prof John MacMillan directly to ensure continuity of services to our clients and to facilitate community visits and genetic education sessions for individuals, families, clinics, schools, aboriginal land councils and other community groups.

In October 2011 the MJD Foundation and the General Practice Network NT (GPNNT) ran a series of Workshops called "Genetics in General Practice" across 5 locations in 5 days aimed at providing genetic education to health professionals.

Click here for our MJD Genetic Education Resources including the Workshop contents.

 Angurugu School

Angurugu School - April 2011

The MJDF Genetic Education trips with Assoc Prof John MacMillan are:
- Apr 2014 - Ngukurr; Darwin
- Aug 2013 - Groote Eylandt
- Apr 2013 - Elcho Island; Darwin
- Mar 2012 - Central Australia
- Oct 2011 - Katherine; Darwin; Elcho Island; Groote; Nhulunbuy
- May 2011 - Elcho Island
- Apr 2011 - Ngukurr
- Apr 2011 - Groote Eylandt
- Oct 2011 - Nhulunby
- Aug 2010 - Groote/Elcho Island
- Mar 2010 - Nhulunbuy/Groote Eylandt
- Aug 2009 - Nhulunbuy/Groote Eylandt
- Mar 2009 - Groote Eylandt
- Aug 2008 - Groote Eylandt