MJD Foundation

Welcome to the MJD Foundation

Mission Statement

The MJD Foundation works in partnership with Aboriginal Australians, their families and communities living with Machado-Joseph Disease to provide comprehensive supports and engage in research, providing hope for the future.

The MJDF uses the term Aboriginal in preference to Aboriginal and Torres Strait Islander in recognition that Aboriginal people are the original inhabitants of Arnhem Land. Aboriginal and Torres Strait Islander is used in the national context. No disrespect is intended to our Torres Strait Islander families and communities. The MJDF acknowledges the inclusion of Torres Strait Islanders who may be affected by MJD. 

Gayangwa’s Story

GayangwaGayangwa is an Anindilyakwa woman of Groote Eylandt, she is 73 years old, and Machado-Joseph Disease has been a part of her life as long as she can remember. 

Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40s.  She was the primary carer for two of her sisters’ children for over 15 years. Now the third generation of her family is sick - her 21 year old niece passed away in 2014, and she has nieces, nephews and grandchildren with the disease.

Few people have the insight and experiences living with the disease that Gayangwa has, and she brings to her role within the MJD Foundation a fierce determination to improve life for her family.  Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets and her quiet dignity and perseverance for them is an inspiration. 
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)                     


Latest News

Annual Report 2016-17Feb 18 - MJDF Submission to Parliamentary Joint Standing Committee - NDIS Markets =>Download
Dec 17 - Annual Report 2016-2017 =>Download
Dec 17 - MJDF Bequest brochure is now available =>Download
Oct 17 - MJDF Urinary Continence paper published =>Download
Aug 17 - Better Indigenous Genetic (BIG) Health services workshop =>More
Aug 17 - Zebrafish research results published =>More
Aug 17 - MJDF Submission to Parliamentary JSC NDIS Transition =>Download
Jul 17 -  MJDF NDIS Unit Costing review =>Download
Jul 17 -  MJDF Submission to the Productivity Commision re NDIS costs =>Download
May 17 - MJD Genetic Roadshow a great success =>More


=>More News

Coming Events

Bec LyonsMar 2018 - Share Bec's journey as she embarks on the Ten Summits Challenge to raise awareness and research funds for Machado-Joseph Disease =>Find out more

2018 - The MJDF turns 10 in 2018. Watch out for some celebratory events.

=>Click here for News & Coming Events