MJD Foundation

Welcome to the MJD Foundation

Mission Statement

The MJD Foundation works in partnership with Aboriginal Australians, their families and communities living with Machado-Joseph Disease to provide comprehensive supports and engage in research, providing hope for the future.

The MJDF uses the term Aboriginal in preference to Aboriginal and Torres Strait Islander in recognition that Aboriginal people are the original inhabitants of Arnhem Land. Aboriginal and Torres Strait Islander is used in the national context. No disrespect is intended to our Torres Strait Islander families and communities. The MJDF acknowledges the inclusion of Torres Strait Islanders who may be affected by MJD. 

Gayangwa’s Story

GayangwaGayangwa is an Anindilyakwa woman of Groote Eylandt, she is 73 years old, and Machado-Joseph Disease has been a part of her life as long as she can remember. 

Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40s.  She was the primary carer for two of her sisters’ children for over 15 years. Now the third generation of her family is sick - her 21 year old niece passed away in 2014, and she has nieces, nephews and grandchildren with the disease.

Few people have the insight and experiences living with the disease that Gayangwa has, and she brings to her role within the MJD Foundation a fierce determination to improve life for her family.  Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets and her quiet dignity and perseverance for them is an inspiration. 
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)                     

      


Latest News

Disability Service Model CoverJul 18 - "Walking and Moving About", MJD Research keeping people stronger for longer =>More
Jun 18 - MJDF celebrates our 10th birthday =>More
May 18 - Publication "MJDF - Disability Service Delivery Model" =>View here
Mar 18 - MJDF launches Strategic Plan 2018-2021 =>View here
Mar 18 - Ten Summits Challenge raises more than $26,000 for MJD Research =>Find out more
Feb 18 - MJDF Submission to Parliamentary Joint Standing Committee - NDIS Markets =>Download
Dec 17 - Annual Report 2016-2017 =>Download
Dec 17 - MJDF Bequest brochure is now available =>Download
Oct 17 - MJDF Urinary Continence paper published =>Download

 

 

=>More News


Coming Events

 

=>Click here for News & Coming Events