Welcome to the MJD Foundation
The MJD Foundation seeks to provide a better quality of life for Indigenous Australians and their families living with Machado Joseph Disease in Arnhem Land and beyond.
=> A message from our Director, Research and Community Services
Gayangwa is a Warnindilyakwa woman of Groote Eylandt, she is 70 years old, and Machado Joseph Disease has been a part of her life as long as she can remember.
Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40s. She has been a carer for two of her sisters’ children for over 18 years. Now the third generation of her family is sick - her 20 year old niece has been using a wheelchair since she was 14.
Few people have the insight and experiences living with the disease that Gayangwa has. She brings to the MJD Foundation a fierce determination to improve life for her family. Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets. Her quiet dignity and perseverance is an inspiration.
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)
Click here for our Documentary "No Shame, No Blame... Just Hope"
Aug 13 - DVD "MJD Family Business - Messages for Women" launched on Groote Eylandt =>More
Aug 13 - DVD "MJD Family Business - Messages for Kids" launched =>View (3 mins)
Jun 13 - MJDF conducts "Disability Audit" across 6 remote communities =>More
Jun 13 - MJDF employee Steve Wurramara wins National award for iPad work =>More
May 13 - Telstra visits the MJDF on Groote, announces funding =>More
May 13 - Assoc Prof John MacMillan awarded the prestigeous Rowan Nicks Russell Drysdale Fellowship =>More
May 13 - MJDF invited to sit on the National Disability Strategy - Indigenous Working Group
Apr 13 - "Saltwater & Smiles, Carers' Perspectives on MJD" launched in Darwin =>More
Apr 13 - "Assistive Technology (Equipment)" medical protocol available =>More
Mar 13 - Physiotherapy on Groote Eylandt =>More
Mar 13 - MJDF conducts training for Vincent Aviation in safe lifting/transfering =>More