MJD Foundation

Welcome to the MJD Foundation

Mission Statement

The MJD Foundation seeks to provide a better quality of life for Indigenous Australians and their families living with Machado Joseph Disease in Arnhem Land and beyond.
=> A message from our Director, Research and Community Services

Gayangwa’s Story

Gayangwa is a Warnindilyakwa woman of Groote Eylandt..Gayangwa is a Warnindilyakwa woman of Groote Eylandt, she is 70 years old, and Machado Joseph Disease has been a part of her life as long as she can remember. 

Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40s.  She has been a carer for two of her sisters’ children for over 18 years. Now the third generation of her family is sick - her 20 year old niece has been using a wheelchair since she was 14.

Few people have the insight and experiences living with the disease that Gayangwa has. She brings to the MJD Foundation a fierce determination to improve life for her family.  Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets. Her quiet dignity and perseverance is an inspiration. 
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)                           

Click here for our Documentary "No Shame, No Blame... Just Hope"


Latest News

Disability Service Awards 2014 MJDFNov 14 - Anthony and team hold a fundraising BBQ in Darwin =>More
Nov 14 - MJDF nominated at the Disability Services Awards =>More
Nov 14 - Telstra 'Hackathon' Competiton develops speech banking App =>More 
Oct 14 - MJDF celebrates Carers Week at Ngukurr =>More
Sep 14 - Groote Eylandt bike ride raises $1700 for the MJDF =>More
Aug 14 - "One People One Voice" festival at Umbakumba =>More
July 14 - Motivation Australia and MJDF run Wheelchair Prescription Workshop 
=>More
Jan 14 - Indigenous Affairs Minister Scullion overturns grant funding =>More

 =>More News


Coming Events

12 Dec 14 - Ben & Joe, along with their fundraising team, are raising money to support the MJD Foundation by running in the Honolulu Classic Marathon. Donate at Everyday Hero. 

Zebra FishSave the date!! 28th/29th August 2015, Cairns QLD - MJD International Research Conference

On 28th/29th August 2015, the MJD Foundation is hosting the International MJD Research Conference. Leading researchers from around the world will come together to present their latest scientific findings. The conference will have a molecular/neurological (curative/treatment) stream and a functional (quality of life) steam. ABSTRACT submissions will open in February 2015.

=>More