MJD Foundation

Welcome to the MJD Foundation

Mission Statement

The MJD Foundation seeks to provide a better quality of life for Indigenous Australians and their families living with Machado Joseph Disease in Arnhem Land and beyond.
=> A message from our Director, Research and Community Services

International MJD Conference logoAddressing the first ever International Conference on Machado Joseph Disease (MJD) held in Australia on 28/29 August, the Chairperson of the Anindilyakwa Land Council (Groote Eylandt) and MJDF Board member Mr Tony Wurramarrba AO stated 'there are people all over the world who have MJD and for all of us learning more about MJD is the key to finding the hope that is so badly needed for future generations'. He went onto say that 'now that we know that the disease is a family disease and that is passed on from parents to children and there will be even more of our families affected by MJD, it has become even more important to understand the disease'.

Read more about the conference

Gayangwa’s Story

Gayangwa is a Warnindilyakwa woman of Groote Eylandt..Gayangwa is a Warnindilyakwa woman of Groote Eylandt, she is 73 years old, and Machado Joseph Disease has been a part of her life as long as she can remember. 

Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40s.  She was the primary carer for two of her sisters’ children for over 15 years. Now the third generation of her family is sick - her 21 year old niece passed away in 2014, and she has nieces, nephews and grandchildren with the disease.

Few people have the insight and experiences living with the disease that Gayangwa has, and she brings to her role within the MJD Foundation a fierce determination to improve life for her family.  Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets and her quiet dignity and perseverance for them is an inspiration. 
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)                           

Click here for our Documentary "No Shame, No Blame... Just Hope"

Latest News

Minister_ScullionOct 17 - MJDF Urinary Continence paper published =>Download
Aug 17 - Better Indigenous Genetic (BIG) Health services workshop =>More
Aug 17 - Zebrafish research results published =>More
Aug 17 - MJDF Submission to Parliamentary JSC NDIS Transition =>Download
Jul 17 - MJDF NDIS Unit Costing review =>Download
Jul 17 - MJDF Submission to the Productivity Commision re NDIS costs =>Download
May 17 - MJD Genetic Roadshow a great success =>More
Mar 16 - MJDF Federal Court appeal for ABA funding SUCCESSFUL =>View
Dec 16 - MJDF Annual Report 2015-2016 released =>View  and Addendum 
Nov 16 - Careworker education session held in Darwin =>More
Nov 16 - RAHC and MJDF launch a new eLearning module =>More

=>More News

Coming Events

=>Click here for News & Coming Events