Welcome to the MJD Foundation
The MJD Foundation seeks to provide a better quality of life for Indigenous Australians and their families living with Machado Joseph Disease in Arnhem Land and beyond.
=> A message from our Director, Research and Community Services
RIP John MacMillan
We are devastated that Associate Professor John MacMillan lost his battle with cancer in December 2014 aged only 55. John has been with us since 2008, and his work with the MJD Foundation was ground-breaking. He was a wonderful man, and we will miss him. Our thoughts are with John's wife Sarah and his children Ewen, Lucy and Kieran.
The MJD Foundation intends to continue John's genetic education work in his name. If you would like to make a tax deductable donation to the "John MacMillan Indigenous Australian Genetic Education Program" please follow this link and note "John MacMillan" in the "special message" field.
Read messages for John here.
Some of the important work that John did with the MJDF is listed here:
- Women's Genetic Education DVD =>More
- SARA Ataxia Rating DVD =>More
- Genetic Education Clinic education =>Flyer
- Development of a Genetic Counselling checklist
- Performing neurological SARA assessments =>More
- Helped the MJDF to rollout to new communities =>Ngukurr
- Countless visits to communities providing Genetic Education sessions
- Founding member of the MJDF Research Advisory Committee
As part of John's journey with the MJDF, he was awarded the prestigious Rohan Nicks Russell Drysdale Fellowship.
Gayangwa is a Warnindilyakwa woman of Groote Eylandt, she is 70 years old, and Machado Joseph Disease has been a part of her life as long as she can remember.
Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40s. She has been a carer for two of her sisters’ children for over 18 years. Now the third generation of her family is sick - her 20 year old niece has been using a wheelchair since she was 14.
Few people have the insight and experiences living with the disease that Gayangwa has. She brings to the MJD Foundation a fierce determination to improve life for her family. Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets. Her quiet dignity and perseverance is an inspiration.
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)
Click here for our Documentary "No Shame, No Blame... Just Hope"
Jan 15 - MJDF Annual Report for 2013/2014 is available to download
Dec 14 - Rowena and family go on a Holiday of a Lifetime to Sydney =>More
Nov 14 - Anthony and team hold a fundraising BBQ in Darwin =>More
Nov 14 - MJDF nominated at the Disability Services Awards =>More
Nov 14 - Telstra 'Hackathon' Competiton develops speech banking App =>More
Oct 14 - MJDF celebrates Carers Week at Ngukurr =>More
Sep 14 - Groote Eylandt bike ride raises $1700 for the MJDF =>More
Aug 14 - "One People One Voice" festival at Umbakumba =>More
July 14 - Motivation Australia and MJDF run Wheelchair Prescription Workshop =>More
Jan 14 - Indigenous Affairs Minister Scullion overturns grant funding =>More
12 Dec 14 - Ben & Joe, along with their fundraising team, are raising money to support the MJD Foundation by running in the Honolulu Classic Marathon. Donate at Everyday Hero.
|Save the date!! 28th/29th August 2015, Cairns QLD - MJD International Research Conference |
On 28th/29th August 2015, the MJD Foundation is hosting the International MJD Research Conference. Leading researchers from around the world will come together to present their latest scientific findings. The conference will have a molecular/neurological (curative/treatment) stream and a functional (quality of life) steam. ABSTRACT submissions will open in February 2015.