MJD Foundation

Welcome to the MJD Foundation

Mission Statement

The MJD Foundation seeks to provide a better quality of life for Indigenous Australians and their families living with Machado Joseph Disease in Arnhem Land and beyond.
=> A message from our Director, Research and Community Services

Gayangwa’s Story

Gayangwa is a Warnindilyakwa woman of Groote Eylandt..Gayangwa is a Warnindilyakwa woman of Groote Eylandt, she is 70 years old, and Machado Joseph Disease has been a part of her life as long as she can remember. 

Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40s.  She has been a carer for two of her sisters’ children for over 18 years. Now the third generation of her family is sick - her 20 year old niece has been using a wheelchair since she was 14.

Few people have the insight and experiences living with the disease that Gayangwa has. She brings to the MJD Foundation a fierce determination to improve life for her family.  Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets. Her quiet dignity and perseverance is an inspiration. 
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)                           

Click here for our Documentary "No Shame, No Blame... Just Hope"


Latest News

Dear MinisterAug 14 - "One People One Voice" festival at Umbakumba =>More
July 14 - Motivation Australia and MJDF run Wheelchair Prescription Workshop 
=>More
July 14 - TIO provided tickets to the Melbourne vs Fremantle AFL game in Darwin =>More
June 14 - Thanks to the Groote Eylandt Aboriginal Trust (GEAT), young Natalya was able to spend the week in Darwin =>More
May 14 - The MJDF Groote team held a stall at the Groote Eylandt careers expo - "Ngambuwa"  =>More
May 14 - Groote Eylandters visit the MJD Zebra Fish in Sydney =>More
May 14 - MJDF team visit Daily Living Expo in Melbourne =>More
Apr 14 - Joyce and Melinda present to Families as First Teachers => More
Jan 14 - Indigenous Affairs Minister Scullion overturns grant funding =>More
Dec 13 - MJDF Annual Report for 2012-2013 (warning - the cover photo at the bottom is an image of a beautiful lady who passed away in January 2014) =>Download
Dec 13 - The beautiful Kaitleen from Elcho Island chose the Gold Coast for her MJDF Holiday of a Lifetime =>More
Oct 13 - Vincent Aviation wins Carers NT Business Award =>More
Oct 13 - MJDF staff and clients conducted two days of Machado Joseph Disease training to Medical students =>More
Oct 13 - Adored Natalya from Groote Eylandt went to Cairns with her family =>More
Oct 13 - Angurugu Library gets a 27m ramp installed =>More 

 =>More News


Coming Events

12 Dec 14 - Anthony and his team are raising money to support the MJD Foundation by running in the Honolulu Classic Marathon. Donate at Everyday Hero. 

=>More