Welcome to the MJD Foundation
The MJD Foundation seeks to provide a better quality of life for Indigenous Australians and their families living with Machado Joseph Disease in Arnhem Land and beyond.
=> A message from our Director, Research and Community Services
Call for Abstracts & Registrations are now OPEN!
On 28th/29th August 2015 the MJD Foundation is hosting the International MJD Conference. The conference theme of "excellence in research - a world of hope" will bring together people from around the world - scientists, health care professionals, and families - to share experience and knowledge of Machado Joseph Disease.
Registrations and Abstracts are now open for the MJD International Conference. Everyone who registers by 12th June will go in the draw for a pre or post conference trip to Groote Eylandt in NE Arnhem Land. There will be two trips drawn, flying to Groote Eylandt for 5 nights.
Visit the conference website for information about how to submit your abstract and register http://conference.mjd.org.au
MJD Clinical Workshop
The MJD Foundation has secured Commonwealth DoH funding to assist Primary Health Centres to deal with MJD in their communities. A workshop has been planned for June 18th, from 8:30 am - 4pm in Darwin. The day will consist of presentations by a panel of experts comprised of clinicians and allied health professionals who have experience with MJD, and some clients. There will also be opportunity for discussion and sharing of skills in small groups. Click here for more info.
Gayangwa is a Warnindilyakwa woman of Groote Eylandt, she is 72 years old, and Machado Joseph Disease has been a part of her life as long as she can remember.
Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40s. She was the primary carer for two of her sisters’ children for over 15 years. Now the third generation of her family is sick - her 21 year old niece passed away in 2014, and she has nieces, nephews and grandchildren with the disease.
Few people have the insight and experiences living with the disease that Gayangwa has, and she brings to her role within the MJD Foundation a fierce determination to improve life for her family. Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets and her quiet dignity and perseverance for them is an inspiration.
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)
Click here for our Documentary "No Shame, No Blame... Just Hope"
Mar 15 - MJDF launches new design of aisle wheelchair =>More
Jan 15 - MJDF Annual Report for 2013/2014 is available to download
Dec 14 - Rowena and family go on a Holiday of a Lifetime to Sydney =>More
Nov 14 - Anthony and team hold a fundraising BBQ in Darwin =>More
Nov 14 - MJDF nominated at the Disability Services Awards =>More
Nov 14 - Telstra 'Hackathon' Competiton develops speech banking App =>More
Oct 14 - MJDF celebrates Carers Week at Ngukurr =>More
Sep 14 - Groote Eylandt bike ride raises $1700 for the MJDF =>More
Aug 14 - "One People One Voice" festival at Umbakumba =>More
July 14 - Motivation Australia and MJDF run Wheelchair Prescription Workshop =>More
Jan 14 - Indigenous Affairs Minister Scullion overturns grant funding =>More