MJD Foundation

Welcome to the MJD Foundation

Mission Statement

The MJD Foundation seeks to provide a better quality of life for Indigenous Australians and their families living with Machado Joseph Disease in Arnhem Land and beyond.
=> A message from our Director, Research and Community Services

Gayangwa’s Story

Gayangwa is a Warnindilyakwa woman of Groote Eylandt..Gayangwa is a Warnindilyakwa woman of Groote Eylandt, she is 70 years old, and Machado Joseph Disease has been a part of her life as long as she can remember. 

Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40s.  She has been a carer for two of her sisters’ children for over 18 years. Now the third generation of her family is sick - her 20 year old niece has been using a wheelchair since she was 14.

Few people have the insight and experiences living with the disease that Gayangwa has. She brings to the MJD Foundation a fierce determination to improve life for her family.  Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets. Her quiet dignity and perseverance is an inspiration. 
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)                           

Click here for our Documentary "No Shame, No Blame... Just Hope"


Latest News

Dear MinisterJan 14 - Indigenous Affairs Minister Scullion overturns grant funding =>More
Dec 13 - MJDF Annual Report for 2012-2013 (warning - the cover photo at the bottom is an image of a beautiful lady who passed away in January 2014) =>Download
Oct 13 - Vincent Aviation wins Carers NT Business Award =>More
Oct 13 - MJDF staff and clients conducted two days of Machado Joseph Disease training to Medical students =>More
Oct 13 - Angurugu Library gets a 27m ramp installed =>More 
Aug 13 - DVD "MJD Family Business - Messages for Women" launched on Groote Eylandt =>More
Aug 13 - DVD "MJD Family Business - Messages for Kids" launched =>View (3 mins)
Jun 13 - MJDF conducts "Disability Audit" across 6 remote communities =>More
Jun 13 - MJDF employee Steve Wurramara wins National award for iPad work =>More
May 13 - Telstra visits the MJDF on Groote, announces funding =>More
 

 =>More News


Coming Events

28 May 14 - "Ngambuwa - Where are you going?"
A job's festival on Groote Eylandt with local employers talking about the work they do and the jobs for Eylandters.

5 July 14 - Volunteer induction day 9.00am - 1.00pm Darwin. Register your interest.

21 - 23 July 14 - Wheelchair prescription workshop for allied health professionals. Register your interest.

=>More