Welcome to the MJD Foundation
The MJD Foundation seeks to provide a better quality of life for Indigenous Australians and their families living with Machado Joseph Disease in Arnhem Land and beyond.
=> A message from our Director, Research and Community Services
Addressing the first ever International Conference on Machado Joseph Disease (MJD) held in Australia on 28/29 August, the Chairperson of the Anindilyakwa Land Council (Groote Eylandt) and MJDF Board member Mr Tony Wurramarrba AO stated 'there are people all over the world who have MJD and for all of us learning more about MJD is the key to finding the hope that is so badly needed for future generations'. He went onto say that 'now that we know that the disease is a family disease and that is passed on from parents to children and there will be even more of our families affected by MJD, it has become even more important to understand the disease'.
Gayangwa is a Warnindilyakwa woman of Groote Eylandt, she is 73 years old, and Machado Joseph Disease has been a part of her life as long as she can remember.
Her father developed the disease when he was an older man, and all 6 of her brothers and sisters were affected by their 40s. She was the primary carer for two of her sisters’ children for over 15 years. Now the third generation of her family is sick - her 21 year old niece passed away in 2014, and she has nieces, nephews and grandchildren with the disease.
Few people have the insight and experiences living with the disease that Gayangwa has, and she brings to her role within the MJD Foundation a fierce determination to improve life for her family. Her journey through ‘shame’ and ‘blame’ to proud champion is an encouragement to the many people she meets and her quiet dignity and perseverance for them is an inspiration.
=> Gayangwa's speech from the MJD Foundation Launch (30th Aug 08)
Click here for our Documentary "No Shame, No Blame... Just Hope"
Aug 16 - Men's camp and house renovation at Ngalawan =>More
Aug 16 - Accessible School bus for Elcho Island is celebrated =>More
Aug 16 - Eye Movement Disorders in MJD - Medical protocol released =>More
Jul 16 - MJDF welcomes Ali Grootendorst to our team =>More
Jun 16 - Stephanie goes on a kinconnect trip home to Oenpelli =>More
Feb 16 - MJDF celebrates office opening in Darwin =>More
Dec 15 - MJDF Annual Report 2014/2015 released =>Download
Dec 15 - Fed Govt appeals against MJDF win in the Fed Court =>More
Dec 15 - Supporting MJD Clients workshop held in Darwin =>More
Nov 15 - MJDF announced as National Disability Award winner =>More
Nov 15 - ABA court case successful, read the media release here
Aug 15 - MJDF hails outcomes of first international MJD conference in Australia =>More